Created for and by families
living with epilepsy

Living With Magazine is filled with heartfelt stories, real advice, ways to get involved in the community, and everyday resources to help you and your family along the way.

Brynleigh, living with TSC, with her mom, Lauren

Issue 3 - 2022

Highlights
  • Read an inspiring story of a mom who moved beyond feeling helpless and became a scientist
  • Learn about the importance of transition of care and how to start the process using a helpful toolkit
  • Hear from other caregivers on how they tackle challenges like finding quality time with their family or getting support from those around them


Issue 2 - 2021

Highlights
  • Learn about respite care and how to advocate for it
  • Create a Seizure Action Plan (SAP) with an included template
  • Receive tips from other caregivers and patients on how to make the most of telehealth appointments

Issue 1 - 2020

Highlights
  • See what one caregiver places into her ultimate seizure readiness kit
  • Hear from siblings sharing their words of wisdom, advice, and experiences
  • Read tips from a special education teacher and caregiver to help you make the most of Individualized Education Plans (IEPs), and find a template to help you prepare for your next meeting
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This magazine is created for you and written by families living with epilepsy and patient advocacy groups. Please let us know which topics you'd like to see covered in future issues. (select all that apply)
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Other resources

Seizure readiness kit brochure
Seizure readiness kit

Create the ultimate seizure readiness kit with a list of items for you or other caregivers to have on hand in case a seizure occurs.

Download

Create the ultimate seizure readiness kit with a list of items for you or other caregivers to have on hand in case a seizure occurs.

Download
Seizure Action Plan (SAP) template brochure
Seizure Action Plan (SAP) template

Use this template to create a SAP that lets other people, including medical professionals, know your loved one's specific treatment plan that should be followed during and after a seizure.

Download

Use this template to create a SAP that lets other people, including medical professionals, know your loved one's specific treatment plan that should be followed during and after a seizure.

Download
Tips and a worksheet for Individualized Education Plan (IEP) meetings brochure
Tips and a worksheet for Individualized Education Plan (IEP) meetings

This resource can help you navigate the annual goals and support services designed for each individual’s needs, ranging from speech therapy, counseling, and curriculum modifications, to mobility amenities.

Download

This resource can help you navigate the annual goals and support services designed for each individual’s needs, ranging from speech therapy, counseling, and curriculum modifications, to mobility amenities.

Download
Understanding seizures with Lennox-Gastaut syndrome (LGS) brochure
Language selection
Understanding seizures with Lennox-Gastaut syndrome (LGS)

Detailed educational information and resources to help you and your loved one understand and navigate an LGS diagnosis.

Download

Detailed educational information and resources to help you and your loved one understand and navigate an LGS diagnosis.

Language selection
Download
Understanding seizures with Dravet syndrome brochure
Language selection
Understanding seizures with Dravet syndrome

Detailed educational information and resources to help you and your loved one understand and navigate a Dravet syndrome diagnosis.

Download

Detailed educational information and resources to help you and your loved one understand and navigate a Dravet syndrome diagnosis.

Language selection
Download
Understanding seizures with tuberous sclerosis complex (TSC) brochure
Language selection
Understanding seizures with tuberous sclerosis complex (TSC)

Detailed educational information and resources to help you and your loved one understand and navigate a TSC diagnosis.

Download

Detailed educational information and resources to help you and your loved one understand and navigate a TSC diagnosis.

Language selection
Download

Other websites

Seizures are Signs logo

Learn the signs and take a short assessment to begin a conversation with your doctor that may lead to a more specific diagnosis.

Learn more
Unspoken Symphony logo

unspoken symphony gives families a new way to connect with each other through art and music. Upload artwork to generate an original melody, sheet music, and a video file.

Make a melody