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Issue 4 - 2023
Highlights- Read a husband’s perspective on the evolving communication in his marriage, and how he and his wife partner to raise their three kids and care for their daughter living with epilepsy
- Learn from a mom who passed a law in her state for Seizure Safe Schools and how to advocate for change in your local area
- Hear from two sisters whose brother lives with epilepsy about keeping an open dialogue and their vision for the future
Issue 3 - 2022
Highlights- Read an inspiring story of a mom who moved beyond feeling helpless and became a scientist
- Learn about the importance of transition of care and how to start the process using a helpful toolkit
- Hear from other caregivers on how they tackle challenges like finding quality time with their family or getting support from those around them
Issue 2 - 2021
Highlights- Learn about respite care and how to advocate for it
- Create a Seizure Action Plan (SAP) with an included template
- Receive tips from other caregivers and patients on how to make the most of telehealth appointments
Issue 1 - 2020
Highlights- See what one caregiver places into her ultimate seizure readiness kit
- Hear from siblings sharing their words of wisdom, advice, and experiences
- Read tips from a special education teacher and caregiver to help you make the most of Individualized Education Plans (IEPs), and find a template to help you prepare for your next meeting
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This magazine is created for you and written by families living with epilepsy and patient advocacy groups.
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Create the ultimate seizure readiness kit with a list of items for you or other caregivers to have on hand in case a seizure occurs.
DownloadCreate the ultimate seizure readiness kit with a list of items for you or other caregivers to have on hand in case a seizure occurs.
Download
Use this template to create a SAP that lets other people, including medical professionals, know your loved one's specific treatment plan that should be followed during and after a seizure.
DownloadUse this template to create a SAP that lets other people, including medical professionals, know your loved one's specific treatment plan that should be followed during and after a seizure.
Download
This resource can help you navigate the annual goals and support services designed for each individual’s needs, ranging from speech therapy, counseling, and curriculum modifications, to mobility amenities.
DownloadThis resource can help you navigate the annual goals and support services designed for each individual’s needs, ranging from speech therapy, counseling, and curriculum modifications, to mobility amenities.
Download
Detailed educational information and resources to help you and your loved one understand and navigate an LGS diagnosis.
DownloadDetailed educational information and resources to help you and your loved one understand and navigate an LGS diagnosis.
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Detailed educational information and resources to help you and your loved one understand and navigate a Dravet syndrome diagnosis.
DownloadDetailed educational information and resources to help you and your loved one understand and navigate a Dravet syndrome diagnosis.
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Detailed educational information and resources to help you and your loved one understand and navigate a TSC diagnosis.
DownloadDetailed educational information and resources to help you and your loved one understand and navigate a TSC diagnosis.
DownloadOther websites
Learn the signs and take a short assessment to begin a conversation with your doctor that may lead to a more specific diagnosis.
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unspoken symphony gives families a new way to connect with each other through art and music. Upload artwork to generate an original melody, sheet music, and a video file.
Make a melody